Root Causes Clinic · LDN Direct
MCAS Patient Experiences
Living with mast cell activation syndrome (MCAS) can affect meals, sleep, work, and daily life. These patients describe their own experiences with care.
Each account is one person's view at one point in time. These selected quotes do not show how often a treatment helps. Some patients still had symptoms, side effects, or limits. Patients may use several treatments or work with other clinicians. Your care and results may differ.
In patients' own words
Changes that mattered to them, with room for the parts that were still hard.
“I so appreciate you, and I so appreciate Jade. Like, the service you provide, I refer so many people onto you guys.”
“I'm able to eat more things. Like, I'm still staying away from really high histamine stuff and stuff that I know are my biggest triggers. But it has made a big difference in the quality of my life.”
“I am finally starting to have some nights where I'm sleeping better.”
“And by all measures, I'm a whole lot better than when you met me. Continues to get better, but big triggers can still get me dramatically.”
“Much less urticaria, mild reduction to environmental triggers (fragrances/scents), more energy/reduced fatigue”
“Urticaria” means hives.
“Decreased food sensitivities, better sleep, better mood, less pain, fewer rashes (so much fewer rashes!) -- I would refill all of them but $$$ so I am picking the ones I feel do the most”
More patient experiences
Open any topic to read more. These accounts include partial responses and ongoing symptoms.
Flare frequency and duration
“I have less flares, and they last less.”
Pain and sleep issues continued.
Specific, partial response
“It's, it's helping my skin. It's helping my sinuses. One thing, unfortunately, it's not helping with is my throbbing eyes.”
Feeling less reactive to daily triggers
“Nervous system feels calmer, less fight or flight, less easily startled, less reactive to small triggers like loud rooms or bright fluorescent lights.”
A modest change in pain
“I've also noticed less overall pain in my body, though not to a huge degree because I still have a lot of chronic pain.”
Being able to eat more foods
“I can eat a lot more foods now than I could before.”
Burning symptoms and brain fog
“Yes, helped with burning, feeling in mouth, throat, eyes and head. Also reduced brain fog.”
The physician behind LDN Direct
Meet Dr. Sajad Zalzala
Dr. Z is a family medicine physician and the founder of LDN Direct. He earned his medical degree at Wayne State University School of Medicine in 2009. He also completed his family medicine training there.
His work includes low-dose naltrexone, MCAS care, and health optimization. Care starts with a review of your health history, current medicines, and goals.
What to know before you decide
MCAS care can take time and may involve changes to your plan. A visit is a chance to discuss your symptoms, possible benefits, risks, and next steps. A prescription is based on your medical review and is not guaranteed.
About these accounts
Quotes are drawn from patient feedback and follow-up visits. Excerpts keep the patient's wording. Names are omitted for privacy. These accounts are not medical advice or proof that a treatment will work for you. Do not change your medicines based on another person's experience.